In honor of National Sickle Cell Awareness Month, Holland & Knight's Public Policy & Regulation Group is proud to partner with the Black Women's Health Imperative (BWHI) for a four-part podcast series on sickle cell disease. Sickle cell disease is a genetic disease that causes red blood cells, which are normally round, to become C-shaped like a sickle. It is a progressive and debilitating disease that can cause pain crises, organ damage and a shortened lifespan, and it disproportionately impacts communities of color, occurring in See more +
In honor of National Sickle Cell Awareness Month, Holland & Knight's Public Policy & Regulation Group is proud to partner with the Black Women's Health Imperative (BWHI) for a four-part podcast series on sickle cell disease. Sickle cell disease is a genetic disease that causes red blood cells, which are normally round, to become C-shaped like a sickle. It is a progressive and debilitating disease that can cause pain crises, organ damage and a shortened lifespan, and it disproportionately impacts communities of color, occurring in approximately one in every 365 Black or African American individuals in the United States.
This episode is co-hosted by Holland & Knight Senior Policy Advisor Shawna Watley, Policy Counsel for BWHI Kineta Sealey and Senior Director for Alliance Development and Government Affairs at bluebird bio Sonya Elling. They are joined by President and CEO of BWHI Linda Goler Blount. This discussion explores the mission and history of BWHI and the impact the organization has had on black women and women of color. Ms. Goler Blount, an epidemiologist, shares how her background as a scientist has allowed her to bring a different perspective to the organization and to policy discussions in the healthcare space. During this episode, the group highlights the growing healthcare disparities for those living with sickle cell disease and the role implicit racism and bias plays in the treatment of patients. Ms. Goler Blount shares insight on how policies can guarantee access and close gaps. See less -