News & Analysis as of

Genetic Testing Personal Information

Carr Maloney P.C.

23andMe Reaches Proposed Settlement in Data Breach Class Action

Carr Maloney P.C. on

In November 2023, a class action lawsuit was filed against the genetic testing company, 23andMe. The plaintiffs alleged that a data breach resulted in the unauthorized disclosure of 6.9 million users’ personal and genetic...more

Benesch

REMINDER: Washington’s “My Health My Data” Act Now In Effect

Benesch on

Washington’s My Health My Data Act implements strict—and separate—consent requirements for the collection and sharing of an individual’s health data, with few exceptions. As of March 31, 2024 the Washington My Health My...more

Houston Harbaugh, P.C.

23andMe Hack: The Legal Fallout From the Breach and What it Means in PA

Houston Harbaugh, P.C. on

In October of 2023, a hacker claimed online that they had 23andMe users’ profile information. We know this as a result of 23andMe’s required statement to the U.S. Securities and Exchange Commission (SEC) on December 1, 2023. ...more

Sheppard Mullin Richter & Hampton LLP

Texas Joins States Limiting Use and Disclosure of Genetic Data

On June 17, 2023, Texas enacted legislation (the “Legislation”) limiting use of genetic data by certain genetic data testing companies, joining a number of other states in tackling the ever-increasing privacy concerns...more

Foley Hoag LLP - Security, Privacy and the...

Privacy and Security of Genetic Information: The FTC Is Putting Privacy and Security Promises of DNA Companies to the Test

In the FTC’s first case focused on the privacy and security of genetic information, the FTC alleges that San Francisco-based Vitagene, Inc. – now known as 1Health.io – failed to live up to its promises and unfairly changed...more

Jackson Lewis P.C.

Washington State’s My Health, My Data Act Sent to Governor

Jackson Lewis P.C. on

Since the privacy and security regulations were issued under the federal Health Insurance Portability and Accountability Act (HIPAA), critics pointed to the limitations on the reach of those rules. A critical limitation...more

Dorsey & Whitney LLP

Three More California Privacy Bills Become Law: CPPA Rulemaking Responsibility, Genetic Data Breaches, and New Genetic Information...

Dorsey & Whitney LLP on

Californians voted to enact the California Privacy Rights Act (“CPRA”) almost one year ago. Last week, Governor Gavin Newsom signed three new privacy bills into law....more

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